Actor Colin Farrell recently disclosed that his son, James, has Angelman syndrome, one of the driving factors behind Farrell's support for finding a cure for Angelman syndrome and for launching the ...

For the first time, Colin Farrell has opened up his home and talked in-depth about life with his son James, who has Angelman syndrome. James was just a toddler when he was diagnosed with the rare ...

Henry Edberg dug through the play kitchen at his home in Rosemount before serving up the daily special to his older brother. “Vegetables are healthy, so I’m giving you the vegetables,” Henry, 3, told ...

CARLSBAD, Calif., June 13, 2022 /PRNewswire/ -- Ionis Pharmaceuticals, Inc. (IONS), the leader in RNA-targeted therapeutics, announced today that the U.S. Food and Drug Administration (FDA) has ...

Angelman syndrome is a rare neurodevelopmental disorder characterized by changes in brain structure, severe intellectual disability, impairments in speech, motor function, epilepsy, sleep, and unique ...

Colin Farrell revealed that his 20-year-old son, James, has been living with a disorder known as Angelman Syndrome. While speaking with PEOPLE in a recent interview, the Saving Mr. Banks star, 48, ...

This post was updated on April 24, 2019 to incorporate feedback from parents. Names have been changed to protect anonymity. Is this child happy? Source: Joel Frohlich (AI generated with Midjourney) ...

Families of children with rare diseases will often start non-profit organizations to raise money for early-stage research on their child's condition. Fewer of those organizations start their own ...

EVERY DAY. HELLO, WHAT THREE YEAR OLD MADDIE SARGENT IS DOING WALNGKI IS NOTNGHI SHORT OF A MIRACLE THE DAY YOU FIND OUT YOUR CHILD IS DIAGNOSED WITH HER RARE DISEASES WHEN YOU’LL NEVER FORGET THE ...